We had an appointment today with Dr. Windsor. We knew already that there was no diagnosis yet. Last Friday Chris’s biopsy tissue was sent to a molecular lab in California to get genetically studied. It appears the pathology lab here has exhausted its resources. I asked a surgeon friend of a friend to get me some intel from the path lab yesterday, and I took comfort in learning that as soon as she said Chris’s name everyone knew exactly who she was talking about and said they’ve been working on his case every day for a month. It appears his cancer really is that atypical (he’s got a 4 wing, so I’m not surprised*).
Despite not knowing a sure diagnosis, Dr. Windsor decided that he would start Chris on Gleevec, the drug used in most GIST cases. He still believes that’s most likely what Chris has (though clarifies that he does not know that for sure) and decided that taking the Gleevec wouldn’t cause Chris harm as we wait to hear from the lab in CA. Once the sure diagnosis is in, we will adjust the treatment accordingly if necessary.
We stopped on our way home from the appointment to pick up the entire pharmacy, and we now have some of every type of medicine. It feels like. Chris has lost much of his appetite, so we got something for that. He needed stronger pain meds, so we got that, and he needed something for constipation to take with his pain meds, so we got that. The Gleevec seems to have made him quite nauseous tonight, so we got some anti-nausea meds for that. Phew. There’s a lightness in my writing all of this, but these days and tonight have been heavy.
Please pray. You can imagine all the ways we need it so much. We love you each and are so thankful for you.
*Enneagram joke, not medical information