Today’s Appointment

We had an appointment today with Dr. Windsor. We knew already that there was no diagnosis yet. Last Friday Chris’s biopsy tissue was sent to a molecular lab in California to get genetically studied. It appears the pathology lab here has exhausted its resources. I asked a surgeon friend of a friend to get me some intel from the path lab yesterday, and I took comfort in learning that as soon as she said Chris’s name everyone knew exactly who she was talking about and said they’ve been working on his case every day for a month. It appears his cancer really is that atypical (he’s got a 4 wing, so I’m not surprised*).

Despite not knowing a sure diagnosis, Dr. Windsor decided that he would start Chris on Gleevec, the drug used in most GIST cases. He still believes that’s most likely what Chris has (though clarifies that he does not know that for sure) and decided that taking the Gleevec wouldn’t cause Chris harm as we wait to hear from the lab in CA. Once the sure diagnosis is in, we will adjust the treatment accordingly if necessary.

We stopped on our way home from the appointment to pick up the entire pharmacy, and we now have some of every type of medicine. It feels like. Chris has lost much of his appetite, so we got something for that. He needed stronger pain meds, so we got that, and he needed something for constipation to take with his pain meds, so we got that. The Gleevec seems to have made him quite nauseous tonight, so we got some anti-nausea meds for that. Phew. There’s a lightness in my writing all of this, but these days and tonight have been heavy.

Please pray. You can imagine all the ways we need it so much. We love you each and are so thankful for you.

*Enneagram joke, not medical information

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  25. Beverly Brasell & Joseph Slane

    Chris and Sarah,
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  27. Betsy Rogers

    I am very relieved they have started Chris on some meds and all the other meds that accompany a chemo drug.
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    Heavy. Yes. These are heavy things and we hear your sense of feeling the weight. Life and death, something hunting Chris down, and you by extension. We pray that God gives you grace to be lifted up above the heaviness and to experience the lightness that all the greatly afflicted saints got to experience from time to time. Not all the time of course, but momentary liftings. We pray that for you, Chris and Sarah.
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  29. Robin Schwarz

    I’ve been praying for Chris and for you, as well as his doctors. My heart goes out to you in the waiting. I do have a suggestion for the lack of appetite/things not tasting good. It was recommended to me when I was in chemo and I have passed it on to many others and so far, everyone agrees that when nothing else tastes good, popsicles do! It’s an odd suggestion, and I realize it is nothing but sugar. My oncology nurse told me that when it gets hard to eat, even getting sugar into the body is better than nothing at all. I occasionally went through a box a day. Good old fashioned popsicles. Obviously, anything else he can manage to get down is good too, but sometimes it’s just nice to have something that tastes good. Blessings to you both. I will continue to pray!

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    Oh Sarah, we continue to pray. Your words are clear and your needs are made known, through the Holy Spirit who is in us and among us.

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    Oh, Sarah! Thank you for taking the time in the midst of all this misery to let us know what’s happening. Please know you are in our prayers and in our hearts every day!
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  32. Betsy

    Thank you, Sarah.
    May the Lord each day assure you that He is there…that He hears you….He sees you…He knows…that His Hand is moving even when it’s unseen….that you, Chris, and your children are His and He will be your Light and Strength in this dark valley. Amen…so be it!!
    ❤ Betsy K.

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  33. Laurie Rogers Powers

    Every season, every setback, every decision….Lord, cover it all!!! I am praying for you dear Chris and Sarah. Thank you for these updates in the midst of all you are going through.

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  34. Eric Griffon

    Continuing to pray!
    13May the God of hope fill you with all joy and peace in believing, so that by the power of the Holy Spirit you may abound in hope. -Romans 15:13

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